I have a disease. It’s not contagious or life-threatening but it is life-altering. It means I can’t just run out the door at a moment’s notice, sometimes I can’t leave the house at all. It means that I define my life by good days & bad. It means that I’m always thinking and worrying about my bodily functions. Sometimes it means I have to cancel plans last minute. It definitely means that I have had to change the way I live my life.
What really pisses me off is how some people react to this. To get people to understand what I’m going through I tell them to imagine the worst case of the runs they ever had, then multiple by 10. That’s what I usually deal with every day. And that’s a good day. Just because it’s not something you can see, or something you haven’t heard about before doesn’t make it any less serious or fucked up for me. And when I tell you I can’t eat a certain food you are preparing (for the dinner which you invited me to!) don’t tell me “just to eat around it”. Or when I cancel plans don't say “you were fine on Sunday" or "what else is new." That's not being very nice and that’s not being a friend, that’s being an asshole.